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The Klassic's Experience
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Living with Rheumatoid Arthritis
I developed Rheumatoid Arthritis at the age of 18. Rheumatoid
Arthritis ("RA") is an autoimmune system disorder
that can attack at any age. In a healthy body, the immune
system sends inflammation to parts or systems of the body
that are unhealthy, i.e. one develops a fever when ill, or
swelling when injured. This is the body's attempt to flush
the illness or trauma and speed healing. In RA, the system
becomes confused and sends inflammation to joints unnecessarily,
causing chronic pain and swelling. Symptoms include inflamed
joints and/or joints hot to the touch, chronic low-grade fever,
chronic fatigue, muscle loss and weakness, and malaise similar
to flu symptoms. The disease is usually progressive and ultimately
destroys the joints, resulting in permanent disability to
the affected joints.
In my case the
disease progressed over the years despite all treatments available,
both medical and holistic. The illness began with swelling
and inflammation in limited joints and bouts of fatigue and
malaise. For many years I denied the illness. Because of the
sporadic nature of my symptoms at that time, it was easy for
me to ignore the illness when my symptoms were quiet. I am
by nature a very energetic person who has always had many
goals for myself. At that time I really couldn't comprehend
anything that could inhibit me from living out my goals and
dreams.
By the time I was in my late 20's though, the illness became
too severe to ignore. I began seeing a rheumatologist and
sought medical treatment. By then I had remarried and had
two young sons. The disease was so severe that I was having
difficulty caring for my children and completing the daily
tasks of life. I remember fighting back the tears as I tied
my sons' baby shoes in the mornings because the pain in my
hands was so severe. The usual tasks one does to live becomes
insurmountable at times. I struggled while carrying anything,
pushing a vacuum, climbing stairs, driving, turning a key
or a door knob, brushing my teeth, buttoning my blouse. I
found that it was necessary for me to rest when my sons napped
in order to get through the day. But no amount of rest was
enough; I always felt tired and groggy.
Each
of my children learned to be more self-sufficient than the
average kid due to the illness. As soon as my sons were able
to toddle, I taught them how to climb up and down from their
highchairs and car-seats on their own so that I could minimize
my having to lift them. As my children have grown they have
become responsible for doing all the chores Mom can't do,
like carrying in the groceries, vacuuming and scrubbing.
I've always been
amazed at how compassionate these children are. While I have
always attempted to minimize expressing my pain for their
sake, they always know when I am having a hard day and often
do those tender, small things that mean so much, like bringing
me an ice pack or rubbing my shoulders or saying something
like "I'm sorry you're not feeling well, Mom. I love
you," and giving me a good, long hug - the best medicine
in the world.
I have always believed
that the things we perceive as negatives are actually positives
waiting to be revealed and that our challenge is to see through
those perceptions so that we may see the hidden truth or lesson
behind it. So for all the pain and struggle with this illness,
RA has given me many valuable lessons.
RA has inspired
my spiritual growth as I questioned God's will and asked myself
over the years and through various stages of the illness what
my lesson was, what I needed to learn from this pain and disability.
As the disease progressed and robbed me of my health and the
freedom to live life as I wanted, it also gave me many opportunities
for growth, forgiveness and acceptance.
RA
has taught me to be a more compassionate person. Through my
own suffering I have learned to empathize with the suffering
of others. It has taught me forgiveness; I have learned to
forgive myself for being ill (if you are sick you know what
I mean!). This lesson spreads far beyond the illness. Through
my own forgiveness I have learned to forgive others and this
has made me a much more accepting person. It has taught me
to take one day at a time and to live in the moment. I am
able to feel so much joy and gratitude for things others may
take for granted, like the sun falling on my garden flowers,
or the sound of a child's laughter, or warm, soothing bath
water, or a good night's sleep.
My life is very
rich because of this. I have learned that I cannot control
most things in life and this has made me more flexible in
my thinking and more able to take things as they come without
freaking out. It has taught me how to discern between what
really matters and all that fluff we are bombarded with and
how to nurture those things that matter. It has taught me
to be more loving, patient and gentle with others; it has
taught me to be strong and capable. It has taught me to still
have faith even when there appears to be nothing to be hoping
for. It has taught me grace.
All of my life's
goals and dreams had been impacted by the illness and the
side effects of the many medications I have taken over a 20-plus
year period. When I began taking a certain medication for
the RA I was horrified to see my hair coming out in clumps,
breaking off mid-strand as I brushed it and becoming thinner
and more frayed each day. I awoke each morning to find many
hairs on my pillow. When I ran my hands through it, I pulled
handfuls of hair out.
I
became hyper-vigilant about my hair. I stopped washing it
every day, I stopped blow-drying it, I brushed and combed
it ever so gently and began using herbal hair products and
products that supposedly encouraged new hair growth. All of
this was to no avail. My hair continued to fall out.
Before my hair
started falling out I was never really very interested in
my hair or cosmetics. I am for the most part, a natural sort
and really never even wore much makeup. I usually got a haircut
only when my hair really needed it, like every six months
or so and I would usually just blow dry my hair when I washed
it. I normally spent about 4-6 minutes styling my hair each
day, very low-maintenance!
So it really perplexed
me when I became nearly obsessed with my hair as it began
to fall out. I wondered why this was so important to me as
I stared with intrigue at other women's beautiful hair, how
it was thick, shiny and healthy, how it moved and looked so
lovely. I thought of my own dad, mostly bald by age 25 and
my ex-husband, who had thick, beautiful hair; how he examined
his hair each day as it became thinner with age and the many
concerns he expressed about it. This gave me comfort, because
if men, who are overall low-maintenance on the grooming front,
can become so concerned about hair loss then it somehow put
into context my own feelings and concerns.
I
realized that for me this was just one more loss I didn't
want but that this was something I could do something about.
I must say that
I am still surprised that I was willing to invest so much
in my hair and even sometimes have a twinge that I must be
very vain to do so. But then I remember the feelings of loss
around losing my hair, of the many things my illness had taken
from me over the years, and how every time I looked in the
mirror I had a visual reminder of that loss. I acknowledge
the pain of those feelings so for me it is well worth it.
I am amazed at
how pleased I am with it. It is so very natural and the technique
Klassic's used is completely undetectable. The hair completely
matches my own, both in color and texture, yet it is long,
shiny, healthy and beautiful. It is the hair I have always
dreamed of having, the hair I have always wanted.
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